
Hey everybody,
I know it's early, but just wanted to drop a quick update. To be completely honest, I wanted to update the boys pictures with some new ones Tina took yesterday. They are my new favorite pictures of the 10,000+ I'm sure we've taken.
Ethan will go down and have his esophagus dialation surgery again today. They are doing it two more weeks to make sure that it stays at the 8mm they wanted. He's been looking so much better, and his weight is up to 8 lbs 6 oz. It's still been a little scary this week. They think because of his growth that the trach they put in is no longer long enough. He's been turning purple a couple time s day right now and they have to medicate him to relieve him. They don't think he's having "tet-spells" which would be related to his heart, so they have ordered a custom made trach that should allow him to breath easier. His new profile picture to the right was taken yesterday, and you can see how much better he looks each day now.
Kevin is now over 10 lbs, and has definitely found his lungs. The bad part is with him, he apparently LOVES to cry. The good news is, he's becoming a BIG fan of laughing as well. I started cracking up when Tina sent the picture of him with a big goofy grin yesterday.
I fly back to Ohio tomorrow morning, and cannot wait to see my family again. Tina has been doing a great job of holding things together in Ohio. She's amazing. My sister Kristen moved out to Pembroke, NH to live with us last Thursday. It's been a week and we haven't killed each other which is good. I really enjoy having someone around to talk with when I get back from work. Work has been going well. I've started on the road, and am really enjoying it so far. I'm heading up to Maine next week.
Thanks so much to everyone for the prayers, calls, and support. You all are fantastic, and we really do appreciate everything. I know it sounds like a broken record, but we are so grateful for all of you. Have a great day, and a better weekend.
Love,
Ryan, Tina, Ethan, and Kevin
I love the new pictures of the boys! Perfect.
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